Programme and presentations – University of Copenhagen

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Global Genes Local Concerns > Calendar > Global Genes, Local Concerns: A Symposium on Legal, Ethical and Scientific Challenges in International Biobanking > Programme and presenta...

Programme and presentations

GLOBAL GENES, LOCAL CONCERNS: A SYMPOSIUM ON LEGAL, ETHICAL AND SCIENTIFIC CHALLENGES IN INTERNATIONAL BIOBANKING

Programme with abstracts in pdf-format

Global Genes – Local Concerns a project financed by the University of Copenhagen's 2016 programme for excellent interdisciplinary research

Time: Thursday, 16 March 2017 08:00 – 18:30

Place: The Faculty of Law, University of Copenhagen, South Campus, Alf Ross Auditorium, 3rd floor, room 9A-3-01, Njalsgade 76, DK-2300 Copenhagen S

Organizer: Global Genes, Local concerns, a project financed by the University of Copenhagen´s 2016 programme for excellent interdisciplinary research

08:00 – 08:30 Light breakfast and registration

08:30 – 08:45 Welcome
PI Professor Timo Minssen, Faculty of Law, University of Copenhagen (DK)

08:45 – 09:15 Keynote address I: “A duty to share health data?”
Professor I. Glenn Cohen, Petrie-Flom Center, Harvard University (US)

Session 1: BIOBANKS, BIG DATA AND MODES OF COLLABORATION
Moderator: Professor Timo Minssen, Faculty of Law, University of Copenhagen (DK)  
09:15 – 09:30 “Why current data sharing policies will not do the job”
Professor Klaus Høyer, Faculty of Health and Medical Sciences and Associate Professor Aaro M. Tupasela, Faculty of Health University of Copenhagen
09:30 – 09:45 “Bioscience industries use human biosamples – what do they need, how can they access biosamples and how can this be done responsibly?”
Dr Brian J. Clark, Director, Human Biosample Governance at Novo Nordisk A/S (DK)  
09:45 – 10:00 “Biobanks as Knowledge Commons”
Professor Michael Madison, University of Pittsburgh (US)  
10:00 – 10:15 “Anonymization, Big Data, and Privacy”
Dr Jeffrey M. Skopek, University of Cambridge (UK)  
10:15 – 10:45 Panel discussion with speakers and Professor Lars Allan Larsen, Faculty of Health and Medical Sciences, University of Copenhagen (DK)  
10:45 – 11:15 Coffee break    
Session 2: BIOBANKS AND PATIENT INVOLVEMENT
Moderator: Associate Professor Aaro M. Tupasela, Faculty of Health and Medical Sciences, University of Copenhagen (DK)  
11:15 – 11:30 “Trust, exploitation and vulnerability in consent to biobank research – Experiences from Pakistan”
PhD Fellow Nana Kongsholm, Faculty of Humanities, University of Copenhagen (DK)  
11:30 – 11:45 “Unresolved: Why the problem of consent in biobanking won’t go away (and may get worse)”
Professor Timothy Caulfield, University of Alberta (CA)  
11:45 – 12:00 “Dynamic Consent - Building Bridges between the Local and the Global?”
Professor Jane Kaye, University of Oxford (UK)  
12:00 – 12:30 Panel discussion with speakers and Associate Professor Lotte Bang Petersen, Department of Biology, University of Copenhagen (DK)
12:30 – 13:30 Lunch    
13:30 – 14:00 Keynote address II: “Recognising and rewarding the sharing of biological samples and data : a multi-facet challenge”
Dr Anne Cambon-Thomsen, INSERM, Toulouse / CNRS Director (FR)  
Session 3: BIOBANKS, TRANSLATIONAL MEDICINE & TECH TRANSFER
Moderator: Associate Professor Janne Rothmar Herrman, Faculty of Law, University of Copenhagen (DK)  
14:00 – 14:15 "The Patent Process and Informed Consent”
Åsa Hellstadius, Stockholm University (SE)  
14:15 – 14:30 “Biobanking, Scientific Productions and Human Rights”
Professor Peter K. Yu, Texas A&M University (US)  
14:30 – 14:45 “Biobanks as Innovation Infrastructure for Translational Medicine”
Professor W. Nicholson Price, University of Michigan Law School (US)
14:45 – 15:00 “Biobanks and Technology Transfer Revisited from the Perspective of Social Responsibility and Trust”
Research Professor Esther van Zimmeren, University of Antwerp (BE) 
15:00 – 15:30 Panel discussion with speakers and Professor Søren Tvorup Christensen, Department of Biology, University of Copenhagen (DK)  
15:30 – 16:00 Coffee break      
Session 4: BIOBANKS, GUIDELINES & GOOD GOVERNANCE
Moderator: Professor Jens Schovsbo, Faculty of Law, University of Copenhagen (DK)  
16:00 – 16:15 “Redefining responsible research and innovation for the advancement of biobanking and biomedical research”
Postdoc Helen Yu, Faculty of Law, University of Copenhagen (DK)  
16:15 – 16:30 “Is an expiration date for biobanks needed?”
Dr Karine Sargsyan – BBMRI/Head of Biobanking-Graz (AU)  
16:30 – 16:45 “Biobanks and Biobank Networks”
Eva Ortega-Paino – BBMRI, Lund University (SE)  
16:45 – 17:00 “The Right to Science:  Promoting Responsible Data Sharing”
Professor Bartha Knoppers, Mc Gill University (CA)  
17:00 – 17:30 Panel discussion with speakers and Professor Niels Tommerup, Faculty of Health and Medical Sciences, University of Copenhagen (DK)  
17:30 – 17:45 Concluding remarks
Professor Timo Minssen, Faculty of Law, University of Copenhagen (DK)  
17.45 – 18.30 Reception